Wednesday, July 2, 2014

Sleep Study

Once Hazel was diagnosed, our first order of business was to schedule a sleep study. Sleep study? She's the better sleeper between her and Annabelle. She has slept through the night since birth. There's nothing wrong with her sleep. Or is there?
The questions and doubt flooded my heart. She sometimes snores, especially when she's in her car seat. And she does that funny thing with her head to open her airways. Maybe she's sleeping too soundly. Maybe I'm sleeping too soundly. Maybe, maybe, maybe....
Deep breaths.
Count back from ten...
I can do this.
One day at a time.
One step at a time.
Okay. I can do this. We can do this. We will do this.
I had no idea what to expect as the day approached. I Googled, Facebooked, and did my research. I read blogs about other experiences with sleep studies. I saw pictures of other babies hooked up to all the sensors and wires. In doing so, I mentally placed Hazel in those hospital cribs, with the scratchy sheets and gauze wrapped around her face, wires surrounding her tiny body My heart broke. I was still at a loss.
The weeks passed, and the day quickly arrived for us to load up, and travel back to Delaware. Annabelle was so excited, as her and Daddy were going to sleep in a "princess bed " at the Ronald McDonald House. I was to stay with Hazel through her sleep study.
We had an appointment with the pulmonologist in the afternoon, which set my heart and mind at ease. The team at Nemours was friendly and welcoming once again. I cannot say enough for the staff there. Every person in that building greeted us with smiles, answering any questions, and extinguishing any concerns we had.
After we finished up with the pulmonologist, we took advantage of the beautiful weather and the playground. Annabelle was getting antsy, after being stuck in the car all morning, then playing quietly through Hazel's appointment. She was excited to have a chance to run, climb, slide, and swing her energy out.
Before long, we had dinner, and headed back to the hospital. Hazel took a catnap as we navigated the halls towards the sleep center. I got myself turned around at one point, and was helped by a kind maintenance worker, who pointed me in the right direction.
The room was plain. Nothing special about it. A couch on one side, a bed on the other, and a crib in the middle. It was all set up, waiting for Hazel.
This is it.
She was rather tolerant of the wires as they were glued to her hair and face. The technician wrapped a roll of gauze around her head and face to hold all the sensors in place, and wrapped more sensors around her torso. She looked a little silly, with her face all scrunched, peeping out of the gauze wrap. She didn't seem to mind at all.
She nursed.
And fell asleep.
And just like that, the study began.
She only woke a few times, and was settled back down without needing to be held, or nursed again. She really was a champ through the whole procedure.
6:30am came around, and the study was over, just as quickly as it began.
She was cleaned up and sent on her way.
That's it? We're done?
"We will have your results in about two weeks," we were told.
Two weeks? I  have to wait another two weeks to find out if my baby is breathing in her sleep?
When we received the results of the study, we were told that she showed no signs of central sleep apnea. In other words, she's not holding her breath in her sleep. This can be common in achondroplastic children, and can signify bigger proplems. Whew! However, she did experience some obstructive sleep apnea. Snoring. Her airways are so tiny, that any slight inflammation, irritation, or even a little boogery nose, can affect her breathing more than an average child. It wasn't bad enough to cause a need for a CPAP machine, but she was prescribed a few medications to help clear up her airways. She will also have a follow-up study in November, to see she is doing.
Yup. We get to go through it again.
But this time, I know more of what to expect.
Yes, she will be older. Yes, she will probably put up a fight next time. No, it will not be fun.
But it's in November.
Today, I am dealing with today.
Today, she is learning to roll, and reach for toys.
Today, she is starting to babble, and blow raspberries.
Today, she is smiling all the time.
Today, I am choosing to live in the present.
One day at a time.

1 comment:

  1. Wow, I had no idea about Hazel until very recently. I'm so glad she's a healthy little girl born into a great family.